Too Ill to Talk? - User Involvement in Palliative Care (Paperback)

Opening with a useful overview of the literature on user involvement, the book goes on to look at the policy and professional context within which user involvement is undertaken, in particular user involvement in palliative care. In this section, the authors discuss two key concepts - palliative care and empowerment - and analyse the role of self-help groups and new information and communication technologies in this context. The last section of the book focuses on the detailed narratives of people coping with three life-threatening illnesses - cystic fibrosis, multiple sclerosis and motor neurone disease - and in this way the views and experiences of the 'user' are brought into play to critique current policy and practice
Too Ill to Talk? addresses a current health services issue in a refreshingly critical manner. It challenges the assumption that user involvement is either easy to achieve or that it is necessarily welcomed by all parties. It will be valuable reading for students on health studies courses, health professionals and policy makers in health and social care.